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The Value of Online Patient Groups

The Value of Online Patient Groups

Matthias Wienold looks at the role social media can play in the lives of patients. He lives with Cluster Headache Syndrome and found support through a Facebook group for this rare disease. He suggests that there is a lot of value in these virtual groups. He asks for a meaningful and respectful approach to the deep and situated knowledge of patients supporting each other. He considers the role of medical professions in this discourse.

 

Read his Blog in the British Medical Journal: http://blogs.bmj.com/bmj/2016/06/15/how-an-online-patient-group-proved-its-value-to-me/